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Resources

Jump to:  Aphasia | Parkinson’s Disease | LSVT for Parkinson's | Caregivers

American Speech-Language-Hearing Association

www.asha.org

Making effective communication, a human right, accessible and achievable for all.

Aphasia

National Aphasia Association

www.aphasia.org

A nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families

American Heart Association/American Stroke Association

www.strokeassociation.org

National Institutes of Health: National Institute of Neurological Disorders and Stroke

www.ninds.nih.gov

Dedicated to reducing the burden of neurological disease

Aphasia Hope Foundation

Information and resources on aphasia.

www.aphasiahope.org

National Stroke Association: Aphasia

www.stroke.org

The Stroke Network

www.strokenetwork.net

Aphasia Corner Blog

www.aphasiacorner.com/blog/

Aphasia Centers

Please go to The National Aphasia Association for a full listing of community centers and programs.

Parkinson’s Disease

National Parkinson Foundation

www.parkinson.org

The Michael J. Fox Foundation for Parkinson’s Research

www.michaeljfox.org

Parkinson’s Disease Foundation

www.pdf.org

National Center for Biotechnology Information (NCBI):  Parkinson’s Disease

www.ncbi.nlm.nih.gov

Lee Silverman Voice Therapy (LSVT for Parkinson’s)

Parkinson’s Disease Foundation info on LSVT

www.pdf.org (PDF download)

LSVT Global

www.lsvtglobal.com

Resources for Caregivers

Stroke Connection Magazine often has articles for caregivers; here some tips from the November 2010 issue.

  • Take stock of your abilities, needs and concerns. Ask yourself: Am I able to be a caregiver?
  • Ask yourself what you need to do tomorrow, next week, next month and next year to get through this illness. If the time frame is too large, make smaller time assessments of your needs.
  • Determine if your loved one understands and accepts the demands of the illness.
  • Develop a care coaching team — and make a list. Include doctors, nurses, therapists, social workers, financial advisors, attorneys, family members and friends. Make sure the list includes phone numbers and e-mail addresses and is never far from your phone.
  • Learn to laugh at the little things. Time is precious.
  • Find time to talk, cry, laugh, discover, give, take, inspire, hope and dream.
  • Protect your own health. That means eating a good diet and getting regular physical activity and respite care. Get the sleep you need and visit your doctor regularly.
  • De-stress: Implement stress reduction techniques such as exercise, massage, meditation, journaling or a support group.
  • Make sure your home is set up to provide safe care.
  • Use appropriate technology, such as smart phones, medication reminders, life alerts, drop-foot therapeutic devices.
  • Know your limits and set appropriate boundaries.

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American Heart Association/American Stroke Association: Caregivers

www.strokeassociation.org

National Parkinson Foundation: Caregivers

www.parkinson.org

Medicare.gov — Resources for Caregivers

www.medicare.gov/caregivers

Today’s Caregiver

www.caregiver.com

FamilyDoctor.org — Information for Caregivers

familydoctor.org

National Family Caregiver Association

www.thefamilycaregiver.org

Well Spouse Association: Support for Spousal Caregivers

www.wellspouse.org